I am fundraising & riding in support for Miles for Myeloma. As a Myeloma patient I see the need to improve treatments and the quality of life for patients & their families.
As one who has lived with Multiple Myeloma (a rare, incurable and little known form of blood cancer) for 10 years, I have a mission to help find cures and more effective treatments for Multiple Myeloma. To help accomplish this, I am raising money for the IU Simon Cancer Center’s Miles for Myeloma fundraising campaign and I will ride my recumbent trike for 6 hrs (8 am – 2 pm) at Fort Harrison State Park on Saturday, August 15.
The money from Miles for Myeloma will fund research for new treatments. Treatment options available to Multiple Myeloma patients have come a long way over the past 10 years, providing longer survival and a better quality of life. However, as a cure is not yet available, this means a patient generally will spend many years in and out of treatment. Over time, any given drug may become ineffective or intolerable, so a patient will need to try another. With your help, we hope there will always be a "next option" for every patient -- or better yet, a cure!
Through Miles for Myeloma, you are caring for patients and their family members through the Multiple Myeloma support group. The Multiple Myeloma group at IU has been meeting on the first Monday of every month since October 2006 (nearly 9 years). I have been a member of this group since its first meeting and I have received a great deal of insight, information, support, and friendship through this group. As Multiple Myeloma can be a chronic condition, patients and their families have to learn how to live with the unpredictability of the disease, and the ripple effect of health issues it tends to cause. Helping people cope and learn of available resources, support groups are an important part of survivorship.
Many physicians go the extra mile for their patients. Few go more than 2,000. But Dr. Rafat Abonour, and Indiana University myeloma researcher and IU Health physician, has done just that.
Each fall for the past decade, Dr. Abonour and his fellow Miles for Myeloma cyclists - a crew made up of myeloma researchers and medical caregivers, family members of patients and even a few patients themselves - set out on the annual Miles for Myeloma ride. The three-day cycling event gives myeloma patients and their loved ones the opportunity to conduct personalized fund-raising campaigns to generate awareness about the blood cancer and raise funding for IU research aimed at improving treatments for this rare disease.
Since 2005, Miles for Myeloma has raised more that $2.75 million for multiple myeloma research at the IU Simon Cancer Center.
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The average share raises $97.